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Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness.
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| Zeitschriftentitel: | Journal of Clinical Oncology |
|---|---|
| Personen und Körperschaften: | , , , , |
| In: | Journal of Clinical Oncology, 32, 2014, 31_suppl, S. 173-173 |
| Format: | E-Article |
| Sprache: | Englisch |
| veröffentlicht: |
American Society of Clinical Oncology (ASCO)
|
| Schlagwörter: |
| author_facet |
Vliet, Liesbeth van Harding, Richard Bausewein, Claudia Payne, Sheila Higginson, Irene J. Vliet, Liesbeth van Harding, Richard Bausewein, Claudia Payne, Sheila Higginson, Irene J. |
|---|---|
| author |
Vliet, Liesbeth van Harding, Richard Bausewein, Claudia Payne, Sheila Higginson, Irene J. |
| spellingShingle |
Vliet, Liesbeth van Harding, Richard Bausewein, Claudia Payne, Sheila Higginson, Irene J. Journal of Clinical Oncology Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. Cancer Research Oncology |
| author_sort |
vliet, liesbeth van |
| spelling |
Vliet, Liesbeth van Harding, Richard Bausewein, Claudia Payne, Sheila Higginson, Irene J. 0732-183X 1527-7755 American Society of Clinical Oncology (ASCO) Cancer Research Oncology http://dx.doi.org/10.1200/jco.2014.32.31_suppl.173 <jats:p> 173 </jats:p><jats:p> Background: Routine clinical use of Patient Reported Outcome Measures (PROMs) such as the Palliative Care Outcome Scale (POS) may be prevented by a lack of guidance on how to respond to reported symptoms. When using POS in clinical care, clinicians encounter the most difficulties with responding to information needs, depression and family anxiety while breathlessness remains a difficult to treat symptom. We aimed to create a Decision Support Tool (DST) on how to respond to different levels of these patient-reported symptoms. Methods: A systematic search for guidelines and systematic reviews on these topics was conducted (in Pubmed, Cochrane and York DARE databases, Googlescholar, NICE, National Guideline Clearinghouse, Canadian Medical Association, Google.com). In a two-round online Delphi study purposefully sampled international experts (clinicians, researchers, patient representatives) judged the appropriateness (1-9 scale + do not know option) of drafted recommendations for each POS answer category (0-4) and provided qualitative remarks. Recommendations with a median of 7-9 and <30% of scores between 1-3 and 7-9 were included in the DST. Quality was assessed using an adapted GRADE approach. Results: Twenty-five out of 38 (66%) experts participated in round 1, 23 out of 37 (62%) in round 2. Higher POS scores were related to more included recommendations. The DST consists of both a manual and flow-charts of included recommendations for each topic. Overall, psychosocial interventions were recommended for lower levels of depression and breathlessness than drug interventions (e.g., goal-setting/coping versus morphine for breathlessness). Good communication and emotional support were recommended for low family anxiety levels, but a social needs assessment only for higher levels. For information needs recommendations were least discriminative; almost all recommendations (e.g., assess patients’ understanding of information, show empathy) seemed always relevant. Conclusions: The developed DST can assist clinical responses to patient-reported symptoms in palliative care. Future work is needed to test the effect of using the DST on patients’ outcomes. </jats:p> Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. Journal of Clinical Oncology |
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| title |
Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| title_unstemmed |
Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| title_full |
Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| title_fullStr |
Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| title_full_unstemmed |
Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| title_short |
Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| title_sort |
developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| topic |
Cancer Research Oncology |
| url |
http://dx.doi.org/10.1200/jco.2014.32.31_suppl.173 |
| publishDate |
2014 |
| physical |
173-173 |
| description |
<jats:p> 173 </jats:p><jats:p> Background: Routine clinical use of Patient Reported Outcome Measures (PROMs) such as the Palliative Care Outcome Scale (POS) may be prevented by a lack of guidance on how to respond to reported symptoms. When using POS in clinical care, clinicians encounter the most difficulties with responding to information needs, depression and family anxiety while breathlessness remains a difficult to treat symptom. We aimed to create a Decision Support Tool (DST) on how to respond to different levels of these patient-reported symptoms. Methods: A systematic search for guidelines and systematic reviews on these topics was conducted (in Pubmed, Cochrane and York DARE databases, Googlescholar, NICE, National Guideline Clearinghouse, Canadian Medical Association, Google.com). In a two-round online Delphi study purposefully sampled international experts (clinicians, researchers, patient representatives) judged the appropriateness (1-9 scale + do not know option) of drafted recommendations for each POS answer category (0-4) and provided qualitative remarks. Recommendations with a median of 7-9 and <30% of scores between 1-3 and 7-9 were included in the DST. Quality was assessed using an adapted GRADE approach. Results: Twenty-five out of 38 (66%) experts participated in round 1, 23 out of 37 (62%) in round 2. Higher POS scores were related to more included recommendations. The DST consists of both a manual and flow-charts of included recommendations for each topic. Overall, psychosocial interventions were recommended for lower levels of depression and breathlessness than drug interventions (e.g., goal-setting/coping versus morphine for breathlessness). Good communication and emotional support were recommended for low family anxiety levels, but a social needs assessment only for higher levels. For information needs recommendations were least discriminative; almost all recommendations (e.g., assess patients’ understanding of information, show empathy) seemed always relevant. Conclusions: The developed DST can assist clinical responses to patient-reported symptoms in palliative care. Future work is needed to test the effect of using the DST on patients’ outcomes. </jats:p> |
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| author | Vliet, Liesbeth van, Harding, Richard, Bausewein, Claudia, Payne, Sheila, Higginson, Irene J. |
| author_facet | Vliet, Liesbeth van, Harding, Richard, Bausewein, Claudia, Payne, Sheila, Higginson, Irene J., Vliet, Liesbeth van, Harding, Richard, Bausewein, Claudia, Payne, Sheila, Higginson, Irene J. |
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| description | <jats:p> 173 </jats:p><jats:p> Background: Routine clinical use of Patient Reported Outcome Measures (PROMs) such as the Palliative Care Outcome Scale (POS) may be prevented by a lack of guidance on how to respond to reported symptoms. When using POS in clinical care, clinicians encounter the most difficulties with responding to information needs, depression and family anxiety while breathlessness remains a difficult to treat symptom. We aimed to create a Decision Support Tool (DST) on how to respond to different levels of these patient-reported symptoms. Methods: A systematic search for guidelines and systematic reviews on these topics was conducted (in Pubmed, Cochrane and York DARE databases, Googlescholar, NICE, National Guideline Clearinghouse, Canadian Medical Association, Google.com). In a two-round online Delphi study purposefully sampled international experts (clinicians, researchers, patient representatives) judged the appropriateness (1-9 scale + do not know option) of drafted recommendations for each POS answer category (0-4) and provided qualitative remarks. Recommendations with a median of 7-9 and <30% of scores between 1-3 and 7-9 were included in the DST. Quality was assessed using an adapted GRADE approach. Results: Twenty-five out of 38 (66%) experts participated in round 1, 23 out of 37 (62%) in round 2. Higher POS scores were related to more included recommendations. The DST consists of both a manual and flow-charts of included recommendations for each topic. Overall, psychosocial interventions were recommended for lower levels of depression and breathlessness than drug interventions (e.g., goal-setting/coping versus morphine for breathlessness). Good communication and emotional support were recommended for low family anxiety levels, but a social needs assessment only for higher levels. For information needs recommendations were least discriminative; almost all recommendations (e.g., assess patients’ understanding of information, show empathy) seemed always relevant. Conclusions: The developed DST can assist clinical responses to patient-reported symptoms in palliative care. Future work is needed to test the effect of using the DST on patients’ outcomes. </jats:p> |
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| spelling | Vliet, Liesbeth van Harding, Richard Bausewein, Claudia Payne, Sheila Higginson, Irene J. 0732-183X 1527-7755 American Society of Clinical Oncology (ASCO) Cancer Research Oncology http://dx.doi.org/10.1200/jco.2014.32.31_suppl.173 <jats:p> 173 </jats:p><jats:p> Background: Routine clinical use of Patient Reported Outcome Measures (PROMs) such as the Palliative Care Outcome Scale (POS) may be prevented by a lack of guidance on how to respond to reported symptoms. When using POS in clinical care, clinicians encounter the most difficulties with responding to information needs, depression and family anxiety while breathlessness remains a difficult to treat symptom. We aimed to create a Decision Support Tool (DST) on how to respond to different levels of these patient-reported symptoms. Methods: A systematic search for guidelines and systematic reviews on these topics was conducted (in Pubmed, Cochrane and York DARE databases, Googlescholar, NICE, National Guideline Clearinghouse, Canadian Medical Association, Google.com). In a two-round online Delphi study purposefully sampled international experts (clinicians, researchers, patient representatives) judged the appropriateness (1-9 scale + do not know option) of drafted recommendations for each POS answer category (0-4) and provided qualitative remarks. Recommendations with a median of 7-9 and <30% of scores between 1-3 and 7-9 were included in the DST. Quality was assessed using an adapted GRADE approach. Results: Twenty-five out of 38 (66%) experts participated in round 1, 23 out of 37 (62%) in round 2. Higher POS scores were related to more included recommendations. The DST consists of both a manual and flow-charts of included recommendations for each topic. Overall, psychosocial interventions were recommended for lower levels of depression and breathlessness than drug interventions (e.g., goal-setting/coping versus morphine for breathlessness). Good communication and emotional support were recommended for low family anxiety levels, but a social needs assessment only for higher levels. For information needs recommendations were least discriminative; almost all recommendations (e.g., assess patients’ understanding of information, show empathy) seemed always relevant. Conclusions: The developed DST can assist clinical responses to patient-reported symptoms in palliative care. Future work is needed to test the effect of using the DST on patients’ outcomes. </jats:p> Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. Journal of Clinical Oncology |
| spellingShingle | Vliet, Liesbeth van, Harding, Richard, Bausewein, Claudia, Payne, Sheila, Higginson, Irene J., Journal of Clinical Oncology, Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness., Cancer Research, Oncology |
| title | Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| title_full | Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| title_fullStr | Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| title_full_unstemmed | Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| title_short | Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| title_sort | developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| title_unstemmed | Developing a decision support tool for responding to patients’ reported levels of information needs, family anxiety, depression, and breathlessness. |
| topic | Cancer Research, Oncology |
| url | http://dx.doi.org/10.1200/jco.2014.32.31_suppl.173 |